I do think that no one wants to deal with us because they cant fix us.. The reason i think docs have such a problem with us and beleiving us is because its not something you can see in a MRI... and there is no one diagnostic test that says for sure HEY THIS PERSON HAS TOS....
To me if i a doctor cant see it an xray, MRI and so on they dont beleive it is there and therefore they dont want to try and help you because they know they most likely they cant fix it!
Sorry for rambling but just my opinion... .
Pain free hugs