Hello Andrea,

So sorry poor Ali has been having a hard time lately.
My advice re her arm is that if there is any hint of there being a spread of the RSD then it would be so very beneficial for her to have a Stellate Ganglion block asap. Firstly it may help confirm the spread if it has and if so may nip it in the bud before her brain gets hold of it and runs with it.
Is there any way you can talk to the RSD physician at the Children's hospital earlier than planned?
I am a great one for nagging----amazing if you nag enough they will often move mountains for you just to keep you off their backs!
I hope all will be ok---just remember, she is young, she has lots going for her to get much better than she is now as long as she gets the correct care.
cheers Tayla