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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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PD does change us for the better in a lot of ways.
One is that we know what it is to be the guy that makes folks feel a little bit awkward. So far I have handled it by being upfront about PD but in a very particular way. If I'm freezing up, for example, I'll say "My damn meds are wearing off. Craziest darned disease ever made. I'm afraid you'll have to bear with me. Sorry 'bout that." and no more unless they ask. Most seem to assume that I'm brave. (Just show me the door, bwana.)
This may be a guy thing, but if you give them the bare minimum of facts and let them take it from there they do better. I think most people have a part of themselves that is scared of us because they know that something similar waits for them, too. If we aren't around it is easier to pretend otherwise. We "on honey dew hath fed" (any Coleridge fans?)
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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