Wow! I am sorry that things are not looking so good, Andrea! I know from my mom's experience, it is not easy watching your child go through this! I am so sorry.

It does sound like (with the locking, which I experience intermittantly, especially after falls/ injuries) dystonia... I know what that's like- no fun at all! Especially lasting so long.

It's not a normal response, but you aren't dealing with "normal" unfortanetely... it's RSD.

Many hugs xxxxxxxxxxx