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Vicc · 08-19-2007, 10:50 AM

Hi Amber,

I'm not quite sure where you're coming from when you talk about your insurance, but I do see what you mean about the implication that someone with RSD wouldn't have an essential test just because they can't afford it: Unfortunately, it's true. There are some medical tests and procedures that might be helpful, but that we can't afford.

As far as picking a lawyer, I'm a pragmatic former social worker and know that atty's have more money than most of us; enough, even to see a specialist or have a test that counfirms IRI. I suspect most health companies would resist paying a vascular surgeon without some tentative diagnosis. I'm hoping Bruce will be able to read the 2nd post on my thread Facts you...about RSD, and become agnostic enough to bet some money on my hypothesis: and him possibly getting better.

"that RSD is ischemia-reperfusion injury" how do you explain this to RSD'ers that got RSD from like a surgery or even a stubbed toe or a blood draw?? RSD is the brain sending off wrong signals... how do you get this ??

What I'm doing is a sort of Gestalt method of persuading some of the most important people in the world to me: people right here, you, that RSD is IRI. Back at BrainTalk I wrote thousands of words explaining the entire IRI process, and people gave up trying to understand because I hadn't given anyone a reason to want to learn about IRI; this time I'm trying to give the reason's first.

The first post on my Facts thread described exactly how ischemia can cause allodynia in RSD. My next post will describe in precise detail why ischemia is the only "quiet" cause of cold skin and painful hypersensitivity to cold that makes moderate temperatures feel almost like frostbite. Then I will show how ischemia can cause every other sign and symptom of what I'm gonna refer to from now on as RSD/IRI.

After that I will begin to explain IRI: How it was first identified as resulting from surgical trauma, and thought only to involve internal organs; to the point that it has now been identified in skeletal muscle. I'll show why no one has yet noticed how similar RSD is to IRI: IRI people are thoracic surgeons; they're not interested in RSD, and vice-versa.

I hope that as my posts continue, more people will start thinking outside the neurological box. One reason I'll give for getting out of that box is that RSD "experts" won't say cyanosis. Most of us know that this disease comes with cyanosis, so why won't the "experts" talk about it. Yup, conspiracy theorists, I'm with you on this one:

They're hiding something. What are they hiding? The fact that there is no neurological explanation for cyanosis. That is an inconvenient fact they would rather conceal than confront. Cyanosis is proof of RSD and it isn't caused by nerve damage; it's just too much for them to bear.

Once outside that box, you may begin to think that if some of RSD isn't caused by nerve damage, maybe none of it is. Maybe whatever causes the rest of RSD also causes the nerve damage.

You have already seen one way that ischemia causes nerve damage, keep reading my posts and I think I can convince you.

IRI is a disease process that begins with a physical trauma, which is followed by the non-specific immune response (NSIR): They immune system's response to pathogens and to cell debris in the blood. If you want to learn more about the NSIR, just type those letters into a search engine.

IRI involves an increasingly widening area of inflammation that can end suddenly or can eventually cover the entire limb. This inflammatory stage is followed by cyanosis that can approximate the size of the inflammed area. This change doesn't come suddenly, but over time almost all of the formerly inflamed skin becomes cyanotic.

IRI is an NSIR gone out of control, and it is only known to happen when cell debris alone is found. It took more than two years of systematic research before I learned of, and enough about IRI to begin posting about it at BrainTalk. I bored everyone to tears. It will take a while this time; but I hope I can capture your attention first.

I'm hoping that this change in tactics, showing why RSD could be IRI, will lead some to look into IRI more fully. If you do, I know that you'll reach the same conclusion I did: RSD is IRI.

The ultimate point of all this is that RSD isn't treatable; IRI is...Vic