I am sorry to hear about you and your sister. I have neuropathy with some autonomic involvment. It is painful at times,and the pain is very difficult to describe.

I really have given up on convincing people that it's not in my head. Whoever understands, "Great and thank you"! If they don't understand or act like I am imagining this illness, "well I make no apologies to them, and frankly I don't care". I retain my energy to try to get better and heal.

My mum seemsto understand, and she appears to be the only one in my family,and that's enough for me.

It's rare that both you and your sister have severe PN. What sort of PN do you have,and how long have the pair of you had it?

Have you seen a neurologist?