Quote:
Originally Posted by wakegirl
could the people who were self diagnosed (you, a friend, a loved one, any one who doesnt have dr after their names please add an answer, how long you struggled without the help of a doctor (please try to come up with a "close" amount of time that passes in between the doctors dx and how long it took for you to feel like a effective person who just wants to live life and get the meds to allow that freedom easily.) And put the day the doctor actually said i know what it is conclusively.
non doctor dx
number of years it took tou to find a doctor that you are comfortable with
md dx
does that make sense.
i guess because pain management specifics is basically assessed on patients who are either already seeing a doc they are comortable with or they have an appt within a few days or a week at most
there are alot of surveys that talk about the injury (if one did occur)the early diagnosis, and what the patient done to help their doctors in their quest find the answer in the form of a dx
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There's no such thing as self diagnosis unless you're a doctor.
I knew within a couple hours of the doctor suggesting it might be RSD that it was, indeed, RSD. I checked it out online and found the "alcohol on the affected area" test which was highly positive.
I believe docs don't like this diagnosis, they don't like the disease, and they don't like treating it. Not only are they able to provide relatively little help usually but it represents more than most conditions one of the things they don't like about their job; the loss of control of options in diagnosing and treating patients. Like all workers, doctors like to look back on their day and see the good they've done. This can be difficult with RSD patients and even the specialists can become jaded.
We end up going from doctor to doctor looking for relief and a little compassion (in the form of treatment).
If the procedures don't work then the best chance is to find the right combination of drugs that help. You will end up with a new life than what you had before.