I was diagnosed with TOS in January of 2007, have gone through all the testing,(since Sept. 2005) been through the "shuffle" (and still going through it). I was finally referred to a Thoracic Surgeon here in L.A. (one of the top guys) who stated that I was a canidate to have my first rib removed and if I wasn't ready for that was also eligible for Botox injections (bilateral). I left his office very frustrated due to lack of information given. I have since tried to get info on the Scalene Botox injections and am having a hard time finding consistent, reliable info. I would love to hear from someone that has had the bilateral Scalene Botox injections. I was told they last 5-6 mos.???
I have also read in another TOS forum that there is surgery without removing the first rib? This has not been explained to me, I was told the first rib should be removed and then in 3-5 years another surgery would be performed from the top to remove what couldn't be reached through the armpit????
Also..has anyone tried acupuncture and medical message for pain relief?
I would greatly appreciate opinion and input... Thanks.