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Junior Member
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Join Date: Sep 2006
Location: Somewhere between chaos and creation
Posts: 19
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Junior Member
Join Date: Sep 2006
Location: Somewhere between chaos and creation
Posts: 19
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< physiatrist > ?
Yes, I realize I have been fortunate in not having been paralyzed. I've heard of the BS syndrome, but have not been dx with it.
Right now I am taking Topamax and Cymbalta for pain, with some good results. I've been taking the Topamax for a year. I have been on Neurontin, with very bad side effects, Tegretol, which did not help, and was prescribed Depakote but decided not to take it because of possible side effects.
Treating the pain is a never ending ordeal - there doesn't seem to be much that my PCP and neurologist are aware of that is truly effective.
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Spinal cord AVM and aneurysm, C-7 to T-2.
AVM rupture 2002. Both embolized in 2006, AVM obliterated.
AVM grown back, 2010. Aneurysm still embolized. Waiting to have AVM re-embolized.
Scoliosis and fibromyalgia.
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