Tenacity set up a web site which I checked on from time to time, but she no longer seems to keep it up. She had Chiari's syndrome, which could have been curable had she been accurately diagnosed. It was her efforts to have the patient have the right to request any test to help in the diagnosis of PD. She was a great promoter of F=Dopa scans. Unfortunatly, she also was one of the first receipients of DBS surgery, which was of no value for her eventual true diagnosis. After the surgery she suffered from a streph infection that left her with permanent brain damage. So many years ago. I remember you suffered from severe illnesses even before you were diagnosed with PD. You've had a harder life than most. Maybe that is why God gifted you with so much creative/artistic talent. It is a wonderful talent to help yourself and others through the hard times.

Love,
Vicky