--this may be just as long as your post, but hopefully helpful.

Just because one has "normal" nerve conduction studies and EMGs doesn't mean one does not have neuropathy. Most notably, nerve conduction tests cannot detect disorders of the smaller, unmyelinated fibers that subsume the sensations of pain and temperature--these fibers are just too small to be measured with that technology. NCV/EMG can only detect very gross disorders with larger, myelinated nerves, which include all motor neurons and the sensory ones that handle bodily position, vibration, and mechanical touch. Take a look at:

http://www.neuro.wustl.edu/neuromusc...other/axon.htm

http://www.neuro.wustl.edu/neuromusc...ory-small.html

http://www.thecni.org/reviews/13-2-p07-treihaft.htm

Siince autonomic functions are also mediated by small, unmyelinated fibers for the most part, people with small-fiber syndromes often have autonomic symptoms as well. And it is common for people to have mixed types of neuropathies--predominantly small-fiber with some large fiber involvement, for example (especially some larger-fiber sensory involvement).

Also, one CAN get these type of Guillain-Barre type syndromes with acute/sub acute onset from autoimmune molecular mimicry processes. What often confuses doctors is that there may NOT be any motor involvement--and the usual thought is of "classic" Guillain Barre with motor involvement up to and including paralysis. I am certainly living proof of that--my acute onset body-wide burning pain started in my right foot April 12 2003, progressed from a small tingle on the bottom of my right foot to a searing pain over my whole foot in four hours, then was in my hands three days later, and in my whole body in ten days. I too had a HUGE battery of tests; I actually was sent into the hospital for MRI's, x-rays, lumbar puncture, numerous blood/urine assays--all negative/normal (and I was in severe searing pain). I never had reduced reflexes or motor symptoms. I was fortunate that I began to get some pain control from Neurontin, and became functional enough again to get an appointment at the Cornell-Weill Center for Peripheral Neuropathy, at which a skin biopsy showed severe small-fiber damage and de-enervation--though no definite cause was revealed (and probably never will be).

There have been a few articles written about this type of presentation, likening it to a "sensory" Guillain Barre:

http://jnnp.bmj.com/cgi/content/abstract/72/4/540

http://www.anesthesia-analgesia.org/...ract/104/2/438

There is also the theory that such symptoms can be caused by an acute onset autommune process at the level of the dorsal root ganglia, from which many of these small-fiber sensory nerves sprout.

There are over 200 known "causes" of peripheral neuropathy, and this doesn't even include neural symptoms that can be caused by problems with the brain or spinal cord, which can exactly mimic symptoms caused peripherally. Generally a thorough work-up is a long, expensive, process of elimination--and most people who say they've had "all the tests" haven't come anywhere near to that. A good guide to testing is the Liza Jane spreasheets:

www.lizajane.org

--very useful for not only suggesting tests but tracking results over time. I also recommend people look through the Poncelet protocols and Dr. Norman Latov's lists of serological tests:

http://www.aafp.org/afp/980215ap/poncelet.html

http://www.questdiagnostics.com/hcp/...eralNeurop.htm

Also, two very comprehensive sites about neuropathy types:

www.neuropathy.org

http://www.neuro.wustl.edu/neuromuscular/naltbrain.html

(This latter one is the diagnostics entry point for the huge neuromuscular conditions database at Washington University of St. Louis' medical website. It is written primarily in outline form, and mostly for medical professionals, but it is extraordinarily comprehensive; going through the links and sub links reveals a wealth of info on neuropathy and other neuromuscular conditions).

Almost all of these are avialable at the top of this board under the "Useful Websites" heading, by the way.

There is a wealth of knowledge here--our databases and diganostic abilities probably overmatch those of most medical centers--so read, and post as many details as possible.