I'm glad you're here!
It sounds like you have good dr's that care to help you manage your experience as you can. How wonderful!
For me it's been a life of maintenance and dealing for the past 23 years. The last seven or so have been so much better since pain management. I was able to get past the horrible panic of the next bad attack, etc., and life was able to come back to a management as opposed to being crippled in pain and fear.
Don't ever hesitate to private message or email me.
Again, welcome!
KD