The movie Lorenzo's Oil.

Ever see it?

The oil was formulated by Augusto and Michaela Odone after their son Lorenzo was diagnosed with adrenoleukodystrophy (ALD) in 1984, at the age of five. Augusto received U.S. Patent No. 5,331,009 for the oil. The royalties he now receives are paid to the Myelin Project which he and Michaela founded to further research treatments for ALD and similar disorders. The Odones and their invention obtained widespread publicity in 1992 because of the movie Lorenzo's Oil.

This mixture of fatty acids reduces the levels of very long chain fatty acids (VLCFA) known to cause ALD. It does so by competitively inhibiting the enzyme that forms VLCFAs..

Now when I clicked on the link that you provided, the terms 'fatty acid", and other wording, well, it absolutely reminded me of the movie. Insurance does not cover this treatment and it only works when the kids are young.


Makes one wonder. Maybe this Odone fellow was on to something??

Worth investigating,right??

Melody