Hi,
Has anyone mentioned Geniculate Neuralgia (also known as Nervus Intermediate Neuralgia)? Here's a link to a description -
http://www.umanitoba.ca/cranial_nerv.../index.html#gn
U. Manitoba has lots of good information about TN, GN and other cranial nerve disorders so check out the rest of that website and take any relevant info with you to your doctors and talk with them about it. Here's a link to their TN website -
http://www.umanitoba.ca/cranial_nerv...lgia/index.htm
Also, the TNA just had a regional conference in Nashville last May at Vanderbilt. Dr. Robert A. Mericle hosted and he's a neurosurgeon, but he's VERY caring. If you're happy with your current Vanderbilt neurologist, that's great, but if you call Dr. Mericle's office and say you were referred by the TNA, I'm sure he can confirm you've got the right one or hook you up with a neurologist who knows about all the cranial neuralgias and can help you sort out which one(s) you're dealing with.
There is also a TNA Support Group in your area with two contacts who can help you. You can get their email addresses from the TNA website at
http://www.fpa-support.org/ then go to Patient Support (you have to register, but it's free and painless). Here are phone numbers for them -
Middle Tennessee, Nashville - Laura Hillis (615) 371-3205, Shirley Luscinski (931) 307-9481
Good luck and keep us posted.
Jean