hi jules,
there is so much conflicting literature as far as exactly what 'full body' means, but from what i can figure from what i read, it is when the immune system is effected and also the internal organs.
i am surprised that you have not heard from some people here who have very severe forms of rsd, and when they consider it full body. that would be helpful and i'm sure someone will chime in at some point when they read this posting.
you sounds like you are suffering, and no matter who calls it what, and at what level, it sounds bad, and my heart goes out to you. figuring out how much rsd you have is like being a little pregnant! even a little is too much.
joan