Advocate us for this or that...but this kind of forum isn't the place. AND then some folks never learn, nor do their medical 'associations' really advocate on behalf of the real sufferers. - US. Especially in the ways SOME of us truly need help.
Could we have a separate 'forum' or resources, or a 'resources' forum on how to work for advocacy of the multitude of medical issues we all deal with? I know many of my interests are well represented by some solid non-profit organizations, others do not 'care to respond', nor are they open about their financials to a degree that I could feel confident in contributing to them. I've very limited resources, I want open and honest organizations to give to. I do not think I am the only person here that feels FRUSTRATED that so little is being done to help US with our conditions, help us live with our conditions and help us maintain living with our conditions. While I realize Neuro Talk is NOT the place to do this...


Uh...WHERE IS? IF I knew where to go for certain types of 'help' at the key times I need help...well that's a shortcut that could get me on the 'waiting lists' for help that I need to be on?

Maybe a 'Who really Helps?' forum that outlines HOW they help and where they help, and how folks could find certain types of help in their areas would be a useful resource? Sort of a PLUG into key resources by city? I don't know. I am frustrated now trying to help others in a different part of the country for key critical medical issues and help.

I guess we just have to keep doing things piecemeal and go on - I can't say I like it? I am obviously frustrated with all support systems for those of us who have one or more key medical issues. Thanks for letting me plain old VENT!? - j