Steff---maybe it's not neuropathic; maybe you have a fasciitis going up the leg. Would kinda fit with the old fibro type thing. Have you considered giving up on doctors for a while and using bodyworkers? I've gotten amazing pain relief from a Feldenkrais practitioner and acupuncturist. really amazing.

I think doctors are very good with problems of the organs, but not great with problems of the matrix our organs sit in. I had a plantar fasciitis many many years ago, and it sounds like what you have been experiencing. It was imossibl to put my foot on the ground. I had injections of steroids right into my feet, along with high dose antiinflammatories, like prednisone, to stop it.

But my feldenkrais practitioner gets good results with her gentle movements.

Are you in a City? Are you open to non-allopathic interventions?

Yeah, nothing fits together, but maybe it's not about an organ, per se.

Prolotherapy, which I almost had, is about getting tendons and fascia inflamed enough to scar down and tighten up loose joints. Maybe you had a stronger than expectable inflammation, which is ongoing.

Anybody put you on a 5 day Medrol pack to see if this worked? It's a good test. It's 5 days of prednisone, starting with a high dose and getting off over the 5 days. I've been on it many times, and it's been used to figure out if my pain was inflammatory and to help my sinuses.

Just some labor day weekend loose end thoughts.