Hi Andy,
I thought I was the only one having such symptoms after my surgery a few years back! I have had Hydrocephalus all of my life (I was born with it). I don't however, have the other condition you mentioned. Even still, it's good to know that there's someone else out there that knows how one feels. It's not the same when a medical professional who does not experience the same issues, says they know how you feel. I do not say this to put medical professionals down at all (Lord knows we need 'em around!
)! It just seems as if they are understanding, but from a *knowledgeable* point-of-view...which isn't a bad thing. They just *possess experience* of such things from a scientific stand-point...
Quote:
Originally Posted by Andy B
my balance got way
out of wack, with what I call waves of vertigo...
|
I had this after my surgery in '03. The thing that got me was when I first ran water over my head to shampoo a few nights later...the vertigo actually hurt!
Quote:
Originally Posted by Andy B
2 weeks ago I had my peritoneal shunt system installed...
I need to mine the groups brains for some insight.......
Since the surgery, I've been really tired. When I say tired, what
I mean is brain tired, I feel mentally exhausted, not physically. I just
can't get motivated to do anything. It's like my brain is telling me to
stop and rest. I'm fine in the morning, but after a few hours I go down hill. In the evening if I sit down for an hour or so, I feel more energetic for a short while....
I thought about depression, but it's not the same feeling. I'm generally in a
good mood. I've been depressed before and I know that feeling. This is
different.
Has anyone else experienced anything like this?  |
I can relate to the
mental fatigue as well. I have been living with this type of fatigue since my surgery in late '03. When my brain "gets tired"
like that (for lack of better words...!
), I just have to sit down or crash-out on the couch, and let my body relax too. Because I think that if one's brain is trying to *take a breather,* then the body should too in order to avoid other issues (such as any possibility of injury from staggering or falling et cetera...).
I do not even try to think when I get this way at all. I just (after making sure the doors are locked and so forth) let myself go for a bit. If a thought happens to cross my mind, I just notice and continue to either be still, or take a power-nap for a bit...
Quote:
Originally Posted by Andy B
I didn't feel this way before the surgery. My uneducated guess is that I have all this foreign tubbing in my body, so my body is using all it's energy making those killer t cells to eradicate it from me.... |
This could very well be...
I wondered the same thing after a full replacement of my VP shunt back in '03...It almost seemed like my body had never been *acquainted* with a shunt before ...
I asked my nsg about this, and he said that this (accompanied by
phantom pains) was normal...
Quote:
Originally Posted by Andy B
My other question is... since the surgery I've been experiencing minor cramping in my mid section. Not where the end of the tube was placed but
on the opposite side and in the middle... anyone out there experience
similar???? |
I had severe muscle spasms in that area too!
My nsg gave me a muscle relaxer and pain killers for it -- this helped very much!
Quote:
Originally Posted by Andy B
Yes, I do admit I'm a typical whiny male, but I would still appreciate any and
all comments/insight.....
Thanks!
Andy
|
In this case/situation, I wouldn't say, "whiny" at all, but concerned.
If it hadn't been for your post on the topic, I would have felt lost about quite a few things...! There's never a thing wrong with asking when concerned about your health. Sometimes we just need to know that there is someone out there who understands...
Thank you for the post!
Yours,
DC