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Old 09-03-2007, 07:27 PM
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
pono pono is offline
Member
 
Join Date: May 2007
Posts: 270
15 yr Member
Default Head & other pain

Headaches have been a Big problem for me. Immmediately after the head injury accident ( I was struck in head when wheelchair lift on van malfunctioned) the worst pain was trauma area-top left side of head. but soon developed "other" headaches. Pain is constant, but vary in severity; mostly back of head, that goes into neck/cervical spine but at times will radiate up thruout head to temporal area and become what I've known as migraines.
Neurologist feels are complex migraines and wanted to treat w/ Botox (while waiting to see if insurance would approve, have been researching botox; seems could be beneficial but expensive) I've also had some strange episodes that manifested as stroke w/ paralysis, speech problems & more. DX: Hemiplegic migraine, a rare type of complex migraine.

The "other" headaches continue--one DR. thought were resulting from cervical spine injury from accident. Recommmeded going to neuro-surgeon & treat w/ pain meds . Prescribed Toradol -prn

another DR (rehab/physiatrist) prescribed anti-convulsant meds used to prevent headaches. Tried topamax (which I used years ago & did help migraines then) but I couldn't tolerate it this time. He also tried some other meds (for neuropathic pain) but many side f/x. Seems I've developed many sensitivies since TBi

I went to new pain mgt DR; she validated PCS Dx & agreed there are problems w/ cervical spine but focused treatment on spasms. Prescribed combo of Fiorecet ( which I had but was taking PRN-not daily-when headaches worsened. DR said take it 3 times day) also Soma, & Ativan. I had muscle relaxants which I'd taken PRN but again DR said must take regularly. At f/u appt last week Fiorect was d/c since it didn't seem to be helping & also stopped Ativan. said continue Soma & added Valium.

I still have headaches, and fall asleep if sit down. But can't sleep when I go to bed. at nite I'm having more spasms, and also neuropathic pain esp. Burning.

I do have neuro issues & chronic pain disorders. those problems began after accident when I was hit by car 12 yrs ago (TBi & other injurys)... but since last injury 8 mths ago --worse. Pre-existing problems exacerbated & new ones emerged.

the first few months after last accident were very difficult. I was so dysfunctional, cognitive & perceptual problems, emotionally volitile & more. then went thru a period of improvement. then problems came back. It's been up & down since ...... presently in a "down"....

Have appt. w/ neuro this week, will see what he thinks... I'm also looking into some more "alternative" non drug treatmts, like Syntonics.
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