View Single Post
Old 09-05-2007, 04:53 PM
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Yikes!

So today I get up after a lovely sleep, worked all night. I have a message from my neuro's office. I call them back thinking it's about my Provigil scrip, which I am going round in circles with BCBS about...another story.

But noooo, the very nice neuro wants to know if I will do an interview with the local paper about my ride with MS and my treatment ( Tysabri)

He didn't have any more details, just said he would give my # to the editor of the paper and I would talk directly with them about the interview.

If I do this it will mean coming out to everyone I know and then some all at once. I live in a rural area and I would be all OUT. Very few people know outside of a close circle of friends.

In a way I am scared to be out. In another way, I feel as if it would be a great relief to tell everyone all at once. I may be able to help others who are " closet" PwMS. I'll be able to let people know about Tysabri and that it doesn't kill you! I may be able to let others know that it's OK to be out and increase awareness of MS in my community.

I'm going back and forth on this issue in my head and would appreciate any input and views from y'all, pro or con
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline