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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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We're stuck in the cracks
One of the maddening things about PD is that so much of the professionals believe it to be "simply" a neurological disease of uncertain origin. Unfortunately it is
Our Immune System (inflammatory response) + Our Endocrine System (stress response) = Neural Damage
As a result most endocrinologists and immunologists barely know we exist and the neurologists spend a lot of time scratching their heads in frustration.
I'm also becoming more and more convinced that, in addition to the longterm effects, there are short term effects due to neural disruption of the chemicals associated with stress and inflammation. So many of the botanicals that do seem to help have actions against one or both of these processes. But the disciplines seldom talk to each other, read their own journals, go to their own conferences, etc.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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