 |
Senior Member
|
|
Join Date: Sep 2006
Location: PA
Posts: 1,236
|
|
Senior Member
Join Date: Sep 2006
Location: PA
Posts: 1,236
|
Well, today was my second steroid IV, so am hoping for better things a few days down the road. Know I have that wonderful "withdrawal" coming, but what's a few more yucky days if it helps in the long run!?! The floaters and flashes are still here, but not as bad. Now I have that "flushed" feeling and steroid headache.
Tomorrow morning the "bloodsucker" comes to get a sample to check my Coumadin level after that heart episode a couple months ago. No wonder my veins are lousy!!!
RW -- that is a tough call, especially if it would affect your employment. Back many moons ago when I was still working, I told my boss since it was a small office with only three of us so we seemed more like friends -- I thought! Was just newly diagnosed, going through a divorce, two rebellious teenagers, trying to support myself and one of those teenagers on a secretary's salary in a small town. At first it was all concern and "how can we help", which soon turned to "you're late again", "everything isn't done in 10 minutes now", etc., etc. Most people aren't aware of the damage already taking place in our brains before it shows up on the outside. If we're not falling down or in a wheelchair right off the bat, they don't believe us when we might need a little extra sleep, more difficulty getting up and dressed etc.
So.....this would be a good chance to educate the masses, but be sure you wouldn't be jeopardizing yourself now and for your future. If the time ever comes when you DO need a cane, wheelchair, etc., then there's no hiding. But hopefully with the Tsyabri that time will never come!! Good luck with whatever decision you make. We're here to listen!
__________________
_____________________________________________
.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch! .
|