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Old 09-06-2007, 07:23 PM
HopeLivesHere HopeLivesHere is offline
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Join Date: Sep 2006
Posts: 292
15 yr Member
HopeLivesHere HopeLivesHere is offline
Member
 
Join Date: Sep 2006
Posts: 292
15 yr Member
Default It's so hard

I was going to make a thread of my own until i read this. I am with you on
all those counts except chewing gum and i don't have a dog to walk

It seems i haven't been to the tos forum forever

The IT pump continues to greatly help the rsd pain, but it does not cover
the pain from tos - the numb fingers, spasms and sickening headaches.
that is the same if not worse because i felt good & tried to do things & then i hurt so much. i went so slowly but no matter what, like you the tos pain is there. i decided i'm going back to not doing anything anymore. not even dust 1 room a day. i tried that but left me sore and achy even tho i didn't reach.

i am in a big huge tos flare - so much it makes me nauseous.
and of course work comp won't pay for the med my doctor orders for this.
they make everything twice as bad.
I go back to bed every 2-3 hours - not like I have a choice.
Staying too long in either place causes pain levels to rise...

after surgery i was looking forward to driving but not with these shoulders and the Knife that neither I or anyone else can pull out of my back.
my doctor does not believe in the pump plus pain pills - strange how it helps rsd pain so well
the pump continues to greatly help the rsd pain, but it does not seem
help tos -- the numb fingers, spasms and sickening headaches, heavy achy arms, etc.
those sx are the same if not worse because i tried to do things.
then i hurt so much.
decided i'm not doing anything anymore. not even dust 1 room a day.
now i am back to where i was BP (before pump)!
i am in a big huge tos flare - so much it makes me nauseous.
and of course work comp won't pay for the med my doctor orders for this.
they make everything twice as bad.
I go back to bed every 2-3 hours - not like I have a choice.
Staying too long in either place causes pain levels to rise...

i was looking forward to driving but not with these shoulders and the Knife that is stuck in my back. my doctor does not believe in the pump plus pain
pills.
if i hurt he ups my pump dosage. i do agree with doing that.
some days are better than others.
so i am working hard on getting back to the good things in my life, the blessings....like my husband, grandchildren, the whole family and many friends. even that i can get out of bed ! that is how i continue on. even before i get out of bed, i focus on the good stuff in life. that seems to set my atitude for the day... because there are alot of positives too.

i didn't want this to be a huge vent on your thread, but it seemed senseless to start another one on the exact same thing.

i wanted to say you are not alone in not being able to do much.
i know that doesn't help you feel better or able to do more things - just that you have a lot of company and You are 100% right, it is no way to live.
Yet we go on anyway hoping for a better afternoon, day, week, month....
take care,
hope
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