Hi - sorry about the Medicare and IVIG issue - just went thru the same thing... indeed IVIG is supposedly not approved by Medicare for CIDP - but there is so much confusion regarding this - that it depends on your doctor, insurance, and where you are receiving the infusion.

If you were getting it at home - Humana just dropped their contracts with home home infusion pharmacies - which is how the infusion agencies were making their money as they could not bill for the home nursing and were making their money on the med only.... Humana Medicare Part D patients are now in a real quandry.... I found I can probably get infusions done only at the hospital day unit (not a free standing infusion center) - and it will still be covered (it depends on the hospital)...

I would suggest checking out this site and emailing them - they will respond - www.igliving.com - I found them very helpful - they had an actual person call me almost immediately and may be able to offer you options depending on where you live, etc.....

Best wishes - I believe there are options out there