I think (because his mom had Guillian Barre), that Alan indeed does have CIDP. But he doesn't have it as bad as others we met (at the Neuropathy meeting). They had to use walkers because of balance problems.

Alan never (to my knowledge) ever had balance problems. but when the neuro examined him, she said "oh your balance is getting better". I never knew he had any balance problems. You know what I mean, when they make you walk on your heels, and walk on your toes across the room, and stand on one foot. Well, before the IVIG, Alan couldn't do this these things (as well as the neuro would have liked, I imagine). But his last neuro visit, she said "oh, your balance is much improved, we are going to change the ivig from two days a month to one day a month".

He has his next neuro meeting in October.

So I gather the IVIG (while it has nothing to do with improving his pain), it's improving his balance.

And thank god, he's walking again. Without the shoe boot thing. You should see the area of his ulcer. It's beginning to look like he never had the ulcer there. And he had that stupid thing for 18 months.

Thank god for the guy at Methodist Hospital and thank god for his sample of regranex.

Mel