Hi Michelle and Welcome!
I understand 100% what you are feeling. I have FM and it's very painful and unpredictable. I know it's with me every day. I have a Neuro, but since he's a royal pain, (and I don't need more pain) I see a Rheumatologist, who is wonderful.

He understands and treats FM. Maybe that would be a start. Hang in there and I am glad you found us. Like Cindy said, the FM forum here is very helpful.