Frustrating, isn't it? A lot of us are in or have been in similar situations.

Early on in all of this, a lot of my blood work was run through Immunosciences Lab in California. I am absolutely zero in the know on these specialized tests, but they were different than your normally run labs. They used Elisa testing (no clue) and a lot of autoantibodies showed up with this, that did not show up in conventional testing...

For example: autoantibodies to Myelin Basic Protein and also Striated and Smooth muscles... Trouble is, I took the tests on to other doctors who had never seen testing like this and did not seem to know how to treat the results, since the AB to Myelin Basic Protein were in peripheral blood, rather than spinal fluid...

I hope you get some answers.

Cathie