Thanks so much for your response, I have been reading this website all weekend looking for some insight. It's so nice to have you people here to help. People who know what it's like. Jenna was very sick 5 days after birth, she had a really bad infection, they didn't think she would live. She spend 3 weeks in ICU. She had Septic Shock and DIC, many adults can't survive that but she did. She is truly a miracle. So at 5 months when they told me she had Hydrocephalus, I was just glad it wasn't anything worse. I was comforting the doctors. I look at it like as long as she's here it's all good. We were blessed with the fact that she had no developmental problems whatsoever. No other problems at all. She is by all means a normal 5 year old and brings joy to our entire family. So when I see her in pain, it kills me. I never gave it a second thought as to what living with Hydrocephalus the rest of her life meant. Now I am starting to realize. I am glad you are all here to help.

Much appreciated

Barbara