Quote:
Originally Posted by ali12
Hi there - Ali's mum here
Just a quick question about Lyrica and side effects
Alison is now on day 7 of Lyrica (she has one week at 50mg twice daily then this steps up to 75mg twice daily)
Whilst I am aware that RSD can cause mood swings and depression, I'm not sure whether its my imagination but it seems that her mood swings have got worse since she started on this medication
We had to go into hospital for therapy yeaterday and the night before we had major problems cos Alison point blank refused to go and began to get very emotional about her illness (about 30 monutes after taking the Lyrica)
By the following morning things had settled down and she was happy to go. but last night the same problems arose - one minute she was OK and then shortly after taking Lyrica again she was back in the opposite mood which lifts about mid morning (about 3 hours after the morning Lyrica tablet)
I know that Lyrica has not been tested on children and wondered if anyone could advise me on their experiences with using the drug for adolescent and pre-adolescent children and any recommended dosages
Alison is only 12 but is the height, frame and weight of a 15 year old so I do wonder if she is being dosed according to weight but as a 12 year old is not emotionally mature enough to cope with that dosage (Hence the previous vision problems with amitriptyline which resulted in the fall and spread of RSD to her arm)
My other worry is the possibility of long term effects stemming from the use of drugs which are not registered for use in children. Hopefully Alison will recover soon but how will exposure to such strong medication effect her in the future.
Any thoughts or advice would be most welcome, especially about whether the side effects will pass
Thanks
Andrea (Ali's mum)
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Hi Andrea,
I am so sorry for the worry that having your little girl with this illness must bring you.
As others have said, I am so happy that it is me who was dealt this blow and not any of my children.
I would be wanting Ali to have a more multidisciplanory type of treatment rather than relying on just medications as being so young does stand her in good stead of being cured.
You may have already told us so I apologise for asking but has she had the benefit of nerve blocks, mirror imagory,ketamine, physiotherpapy, OT and psychology?
I think that the use of these without relying only on medication is one so young would be beneficial however please don't worry too much about the long term affect of medications on her, many people have had a multitude of drugs for years and years from an early age seemingly without any or too many issues.
I wish you and your little girl so much luck
Tayla
