Where do you live? Maybe someone hear knows of a doc in your area. you might find a different neurologist who can diax and treat your TOS. Not all neurologists know about this condition. What about a physiatrist? Check other lists to see if there is anyone in your area. Try tellmeaboutTOS.com or others you may find on the stickies on top of the posts.

This brings up a question I am having. I have seen a local surgeon who does diax TOS but there aren't any other TOS drs I've found in my area. (No, the surgeon doesn't have anyone he can refer me to; I've asked.) No doctors on this good list or on anything else I've seen. I am looking for suggestions on how to find someone to help me with meds and follow up care. I also need a PT and possibly a Physiatrist. Not to mention that I am in a hurry. any ideas??