Hi everyone,

The question here was "systemic --or not"
And by what criteria do you become classified as full body or not.
It appears to be entirely up to personal interpretation as I would say I have 'full body" as all my limbs are involved but systemic is just too strong a word to use as by definition that would imply that every part of my body , including all organs are involved.
Not every single inch of my skin hurts, nor are all my organs, in fact not too many are but I will still call it "full body" as in the scheme of my daily life that is how it feels.
My career has taught me that no two people respond the same to pain, what is one persons 9/10 is another persons 3/10. There are so many factors that account for that, fear and stress are just 2 but whatever the pain score, to that person it is a real pain in the butt (and everywhere else if you have RSD)
What I see from this thread is how pain can affect mood and tolerance in us all----just ask my family
I think we are really good people who in our own way are trying to deal with something that we would rather not, some of us are definitely better at coping, it is very much a personality issue and how this impacts our life is such a variance. I can imagine that someone who was a professional ballet dancer as a profession who develops RSD in their feet may feel the impact more than an architect who develops RSD in their feet. It does't mean their pain is less but when we lose so much of what is intrinsically us and we see our financial and professional security gone then coping levels go crashing down.
It is horrible but it doesn't have to be how we define ourselves, I have admiration for many people and their coping skills, I aspire to be like them and will continue to try and take control of this rather than the other option.
Cheers to all and hoping today is a good day for you all.
love Tayla