Pono,

I hope that IV Living gets back to you - they are very very helpful....

You have Humana Plan D? Because IVIG is not approved by Medicare at home for CIDP - the home infusion agency was only making money on the meds - again, not the nursing....Humana approved the med - but have cancelled most of their contracts with the home pharmacies - therefore they do have a specilalty pharmacy that will give you the med (I had no problem getting approval for it) - but you will have no way to infuse it unless you are classified as homebound and then home nursing is a possibility and paid by Medicare.... as it is - many home agencies are droping medicare patients all-together - as they see treating CIPD as more of a philanthropic gesture because of the low reimbursement rate....

Again, some hopsitals will still administer under Medicare in their on-site day centers - your doc should be able to get this approved but as reimbursement rates have been dropped - many hopsitals are dropping this service too....

My home agency tried to get me to change to Blue Cross Plan D because they just signed a big contract with them and dropped all Humana clients - but theres no guarantee that they will cover you anyway - the agency I worked with has hired a doc to review every CIPD patient and has been encourage to cut at least half of them...

One of the main reasons again is - Medicare is very vague on the restrictions regarding treatment for CIDP - and some agencies and insurances will work with you, some wont....

Encourge you to continue to contact IG Living - they are advocating very strongly in this area and are very much on top of the situation and will be very honest with you!

(also, if you have both Medicare and Medicaid - you can change Plan D at any time during the year)

Hang in there!