I just talked w/ Advocate from IG Living; Kris is awesome. she herself needs & gets IVIG ; also her 2 sons have been getting for many years ( for other disorders not CIDP) So she personally understands the complex issues... and was incredibly helpful ....

She'll be working on this and gave me tasks to do, that included getting copy of my policy from Humana , and specify what is accepted treatmts for CIDP since they're denying IVIG, as its NOT FDA approved for use in this disorder, which has many variants.

Kris validated this is so--that IVIG is FDA approved for very few conditions.
but said there are ways to still fight the insurance Co. She suggested & is sending the articles they often use & sugest DRs read & also use in these cases, which support the use of IVIG. Articles cite many, various DRs/professionals--which is better than "peer reviews" that may be one DR. or research. (which Insurance Co have more difficulting refuting or disagree)

Site has lots of great info...... if not familar encourage any w/ Neuropathy to check out, and if needed copy some of the info. for your DRs.....

*The Neuropathy Assoc. @

http://www.neuropathy.org/site/PageS...me=Type_Immune


Kris also gave me contact info for more advocates.... waiting for call backs.

and said make sure I'm keeping dated copies of all correspondence (inc. envelopes w/ postmarks) she said often the letter is pre-dated 1-2 weeks, giving less time to appeal, etc.
ALso make sure I'm getting ALL correspondence DR,who's my designated REP in appeal, is submitting. For my records & info but also for me to submit by certified mail, to verify receipt. (Humana has already used this excuse & apparently is quite common w/ many providors)

When I called Humana to request the insurance policy info, this REP tells me -after reviewing my case-- I've NOT been denied --that Humana needs more info from DR. This is Not what REP told me last week, she said I was denied & gave cited reason. I have gotten denial letters before; patient & Dr get copies. I haven't received any of those , so maybe this is the correct info now.

I called DR B office to update, & ask for copies sent to me & share info I've gathered. Missy said they often use info from The Neuropathy Assoc. when appealing to validate & support treatmt. and will send me copies as requested.

Missy thanked me for helping ...... but I couldn't/wouldn't have gotten to this point w/out the support, assist, & info. provided here....

THANKS to all who've been sharing & helping me w/ this . esp. the suggestions to contact IG Living.
..... will update
Blessings....