Kmeb.... thanks for all, esp suggestion to contact IG Living. as you & Dahlek expressed they are great.

As to the questions, issues you addressed in your last post-- Yes, I have Medicare Pt. D & Humana is currently my providor. I'm dually insured w/ Medicare (primary) & Medicaid (supplement)

I am considered /deemed "homebound" ( I fit this & other criteria for a state Waiver program, for TBI . that I'll soon be getting some help & services from. I just got the call from program to inform I qualified....)

Round 1 in this other fight is to get the IVIG Drug -gammagard --approved by them [Humana] or someone to cover and pay for the expensive drug.

then how or where to get infusions.
I began my infusion treatmts in hospital few years ago and Medicare covered all. (done at outpatient/ambulatory surgery dept; many people there getting various IV treatmts--there are no local infusions centers)

When my Dr went to another med facility, I was unable to continue geting my treatmts at this local facility after he left.
So I made long drive to new med center where he had "hospital privleges" and got treatmts for awhile.. Besides the 6 hour or longer trip, the infusions could take as long or longer (depending on what was going on in hospital)

I was told MediCaid covered drug & these treatmts at home, which in that situation would avg. 3 hrs.
So I enrolled in state medical assistance & got treatmts + drug at home ... until Medicare Pt. D went into effect 1/2006.
Since , I've been denied.....

Kris, IG Living advocate, brought up issue, since I'm dually insured, why wasn't this rolling over to secondary, Medicaid, who did pay in past??? I wondered this too but have never been able to get answers.. Kris gave me contact # & name that may help w/ this. waiting for call back from her.


I know there've been many changes RE: who, what, where can get infusions coverage .... and as many have stated, each state & insurance providor have own intrpretatations.....

so will see... I'm willing to go to hospital if was local but don't want to have to drive even further. My neuro is now w/ another Medical center 50 miles further than before. Looong drive( not too bad few times year to see my neuro) but for infusions every 3 weeks, esp. when one side effect of IVIG was always tiredness, and often headaches; also much down time in hospitals compared to getting at home BUT if this is how I can get may go for it.... but am looking for better options.... and hoping for best.
I did get spoiled getting the infusions at home; loved my nurse from Home Nursing agency that was doing. She still comes to our home to see my father . Always asks What's happening w/ IVIG??? just let us know if/when we can resume.... hoping that will be soon...

again thanks, for all the help; will update

Blessings