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Old 09-12-2007, 06:33 PM
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Roxie2007 Roxie2007 is offline
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Roxie2007's Avatar
 
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
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HI Megan, I'm SO sorry for all you are going through. I had the whole series of tests...and Nerve conduction test and all came back ok......it wasn't till I had the Nerve/muscle biopsy that it showed Chronic Axonal Neuropathy! My dr. said that most of the time it takes the biopsy to show what the problem is!
Maybe you should try another dr. Talk to your GP about it and hopefully he'll help you find someone who's willing to go farther than the conduction test.
I just feel so bad for you having to go through all this testing! Hang in there, you aren't crazy!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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