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Member
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Join Date: Nov 2006
Location: UK
Posts: 830
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Member
Join Date: Nov 2006
Location: UK
Posts: 830
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Hi Heather
I'm Frogga, I'm 21 and from the UK and I have full body RSD. I also have generalised dystonia. So does your foot twist and then relax? both my feet and legs are inverted and my feet have twisted upside down. We tried botox in them but my legs had been left too late. However I do have botox on my thumbs and my neck and it has helped. It hurts when the needle goes in and for a day or so after but it does help the spasm. However, I don't know if it would be worth going through the pain of having the botox done if your foot only twists for a day or so? only because botox will not work forever and once you start using it your body becomes accustomed to it apparently (which is why with me it works less well every time).
Hope this is some help
Love
Frogga xxxx
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