Hi Ali

I got RSD when I was 16 and I was treated mainly by adult consultants. You really get a much better standard of care as a child - I promise you! I have been messed around so much by consultants who believed I was too young to be this ill with RSD.

You live in the UK don't you. Why don't you see if you could be referred to the Bath PMP? it has a long experience of working with young people with RSD. Also Bristol Childrens hospital has some experience, as does Cardiff and a couple of other hospitals. There is also a consultant up in Scotland (whose name I have currently forgotten) who is also considered a specialist in paediatric RSD, oh and Great Ormond street also has a rehab program for children with RSD which is often quite succesful. Could you ask your consultant or the physio to contact one of their physios to talk about your treatment??

Love

Frogga xxxxx