Hi Andrea,

This is soo rough for you as a parent. Ali is very tense because she is in alot of pain. The pain of RSD is 24/7 worse than any 3 children I delivered.

If I recall rightly, your lovely Ali is only 12. You have got to be a advocate for her.

I personally believe in my case something broke the blood brain barrier. I will find a MD that knows what they are doing if you think this is the case for Ali.

I need to ask you if Ali has a weak immune system as well.

In the meantime if I was you I would write down every SX she has. Doc's like to have their I's dotted and their t's crossed as well, they will put more thought into it let's say. Hang in their with her, she's in rough shape. Much Love, Roz xxx