Jean, thank you for your kind response and the information provided. I am sorry to be slow in responding. My husband has been ill and I’ve had my hands full. We are still working (self-employed) and sometimes it is overwhelming. I read the items you suggested and made a copy of form to ask a neurologist whenever I am directed to one. My primary has increased my meds to 1200 per day. At first they worked somewhat but now I’m beginning to have more random pain. I’m going to call him on Monday for advice.

I had hoped this website was one where I could converse with others regarding this condition but I think I may have been mistaken. I’m feeling fairly alone right now and sharing complaints and stories with others that have this same condition would help me a great deal. I am sorry if I have caused you extra work by responding to my repetitious questions. I’ll look around for a site more suited to my needs. Thank you again……..Marilyn