Hiya,

Thanks everyone!! It was a great trip and it was brilliant to be able to just go away - I just think that level of travel was just abit too extreme for RSD! and even enthusiasm and me generally can't beat that level of pain or at least not for long enough! (I find I can push myself to keep going but suffer big time for it afterwards).

Vicc - I find car journeys really daunting.. more daunting than train journeys or even flying sometimes!!

Liz - great to be back - it was a great trip it's just... I think I over estimated how much I can palm off RSD.

Hey All. Great I inspired you!! where are you going? depending on where it is you can use the tube - I can't use it in London but I can in Berlin or Vienna. Bizzare hey! But go for it and have a try. I'd love to do something like the travel programmes for wheelchair users - it would be so interesting. Because they also don't focus on accessible venues, accessible hotels etc. It would be interesting to do something like that! if you do it can I join in! could be fun! Oh I also take the bus and wheelchair accessible taxis and the trains. I was lucky to have Bec with me because she can lift me as otherwise we wouldn't have managed in some places.. I know she's not supposed to pick me up but we didn't really have a choice as we couldn't fit the hoist in her back pack! lol!!! As long as you do the research travel isn't too bad with the wheelchair - oh and take someone that is strong with you!! love ya xxx

Hey Joan - I defiently have some great memories from it! we had a real blast... I remember particularly going to a very posh cake shop and eating this amazing cake in Salzburg right in the plaza with the Motzart statue - when everyone turned silent when they saw becs feeding me. We found it so funny that the pair of us started dribbling just to see what people would do.. it was great! It was a great great trip apart from the rain and RSD!!

Hey EJ - I so agree!! that would be great

I am really not good at the moment. I don't know how many of you have spinal RSD but do you find that it twists your spine out? I am currently really really suffering from it. I have had to be sedated for the last 2 nights because my fits have become very long and dramatic spasm/ fits lasting hours and are really really painful. We are finding I'm twisting more and more. We start with my spinal brace this week. I don't want to wear it but I know if I don't start then I won't be back to sitting by the time I go back to uni and I know I have to be able to sit upright or at least sit in my electric wheelchair before I go back to uni as otherwise I will have some major major problems! I can't go back and stay in bed all day - I have to be able to be upright for several hours a day, or at least sitting in my electric chair. My new manual is good and I can currently sit for about 20 minutes before it gets too much, and can do that about 3 times a day when forced.

Agh ! it's so frustrating... I also can't move at all and am scared about going back to uni like this. Oh well.

Love ya

Frogga xxxxxx