It's hard for others who've not experienced the numerous bizarre affects of brain injury, to "understand". Even those of us who share this common ground have unique & varied experiences, symptoms, manifestations. It's very difficult for family, friends, Beloveds and even medical professionals to deal with "invisible' disorders....
often I don't understand what I'm going thru, let alone try to "explain".....
I've had plenty of days I really thought I was crazy but know there is a Real reason, that these head injurys have changed me, in ways I don't like.
I continue trying to understand, and seeking ways to deal--personally and via professional help & treatmts.
some DRs have been (trying) to help, by treating more tangible symptoms I present--like headaches, sleep disorders, pain....


I empathize with your frustration of NOT getting help or treatmt from professionals or understanding from Beloveds. Unfortunately the brain is still not well understood, and the subject of TBi or more so Post Concussive syndrome is controversial .



There are so many things that can & do occur following brain injury; some may appear or even become "psych" issues --NeuroBehaviorial,etc- that may be organic -damage that hasn't shown up on tests you've had.... or may take time to figure out what's going on or how best to treat....

some of the "psych" meds could help, depending on your symptoms; some people with TBi /PCS have been helped by antidepresants, anti-anxiety, AED's (anticonvulsants) & other meds for sleep, mood stabilizing, pain, etc.

But these require Dr to prescribe. If I recall your PCP wasn't too helpful?? have you seen a Neurologist, or some other "brain injury specialist' ; some physiatrists--Drs of physical medicine & Rehab - can be good. Maybe even psychiatrists--tho they tend to often be pill pushers. Neuropsychologists are often recommended- may offer insights & help and different kinds of testing & support.
there are other Neuro-specialists --depending on your issues....

Some report benefits of bio or neurofeedback; also acupuncture & other alternative therapies....some have been discussed in forum. Many swear by physical therapy; meditation, focused breathing & "exercises" like yoga, tai chi, chi qong are "mild" & have numerous benefits....

Try to avoid or control your Stressors; and to stay Positive (easier said than done, I know) --you may get "better", or you may go thru periods of improvements & regressions. this has been my experience and can be very frustrating.
Know there are people who do understand & will offer support & can empathize, like the folks here in this Forum.
Have you checked out brain injury support groups in your area. They can be excellent--for info, referring to specialists in your area & more.....

keep researching, to inform & educate in whatever ways you can. Web does have info... tho it's quite variable and does takes time & energy to find things that are relevant to your experiences.
Also posting here, as things come up.... this forum may not be as active as some others but at least we do have a place for Our issues, to share, vent, inquire, etc...

continue learning all you can for your self. and keep trying to share what you learn.... as well as your experiences... Hopefully, those who care about you will "get it" ..... at least you will be more knowlegable & "empowered" ....

I spent much time searching , researching TBI/PCS; I tried to post this info w/ Links, that I thought might be helpful, insighful , informative.
when this Forum first began, and wasn't as "active" as I'd hoped.... I didn't know how to make "stickies" for reference but did use a Green arrow to indicate (if you go back to oldest pages, you may find these.
I tried to focus on "mild" TBI (seems much more info for severe TBI w/ the horror stories you referred to.... but there is other info. and support)

I hope this makes sense.... I can confuse my self!!! PM me if you want more details.....

I will be going back thru these posts again, as I need to again. I just incurred another head injury past week, and feel in many ways I'm starting this crazy cycle all over again. If/when I find info/Links that seem good or appropriate I will let you know. I do recall finding sites that had great info for educating family & friends.

What matters most is you. While it would be nice to have understanding & support, seems we often have to become our own best friend & advocate.

I hope you find what you need; Pray for the Best in this process....
Blessings...