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Old 09-16-2007, 09:21 PM
aloneouthere aloneouthere is offline
Junior Member
 
Join Date: Sep 2007
Posts: 54
15 yr Member
aloneouthere aloneouthere is offline
Junior Member
 
Join Date: Sep 2007
Posts: 54
15 yr Member
Default Wow...thanks for the quick replies..

You guys are great. It feels good to post something, go to sleep and wake up with a bunch of responses =). Thank you.

Rose, thanks for the advice. I did buy a bunch of vitamins.... Methyl b12, benfotiamine + B complex, ALA, Gonna order some GLA, Ginkgo biloba, Acetyl-l-carnitine. But I was wondering if it's ok too hold off on the B vitamins until I get a blood test for possible deficiencies? Unless my general blood test should have already tested for them. The results were all in Korean so my GP just said your blood is normal. I don't really understand what she meant by that.

Daniella, I have not had a MRI of my spine. Nor have I had an EMG. I do however, suspect that it is small fiber damage if anything. Also, it's been really hard for me to be referred to a neurologist to get to that EMG/MRI phase. In regards to the blood test, do I have to request a specific blood test? I thought maybe the general blood test covered most things.... Am I wrong? And yes, I have lost a lot of weight. I actually lost about 10 pounds in one month, but I think that was due to lack of exercise because of this. I like to lift weights and take my protein shakes, but have stopped doing this since my feet were affected. I actually feared my feet were affected by me doing squats with a bad back, which would again, be a possibility... But anyways, the weight loss was mostly muscle, and I have started to gain it back by eating, eating, eating.

Silverlady, my diet hasn't changed too drastically from America. I do eat the traditional korean diet, which consists of Rice and vegetables, but I used to eat that in the states since my parents are very traditional. I do of course, eat lots of meat and dairy as well. As of now, I'm only taking alpha lipoic acid 600 mg a day, which my GP prescribed. I have bought some B vitamins but I am waiting on them to do a b-vitamin blood test first.. I don't want any false readings...

Melody, thanks for the advice. I actually bought the B12 cause I read about you raving about it on these boards. I will push for the MRI, I am really hoping that the spine is causing it....but that doesn't explain the diarrhea.

NTlegend, that could be a possibility. The only problem is that I don't eat fish. I stay away from all sorts of seafood. Is there another illness that's similar to that but doesn't require the ingestion of bad fish?

Yorkiemom, I have changed my diet since. I'm mostly on a sandwich diet that is high in vegetables. I drink water most of the time and try to stay away from sugary things. I don't know how it has affected me but I think I may have to give it some time. In regards to shoes, I bought another pair and spent a lot of money on them. I don't feel a difference, but again I may need more time.

Brian, my feet are not sensitive to touch nor do they have any numb spots on them. My feet actually feel normal to the touch; it's just when I put shoes on for about 2~3 hours or so. I've been to a dermatologist, she said it was caused by stress and gave me a steroid shot for them, and the hair seems to be growing back slowly. I wish it was that easy to say "hey, I think I have PN, can you send me to a PN expert?". To be honest, I don't even know if a PN expert exists here. The process to get a referral is painful and takes a long time. I also noticed that you pretty much healed yourself of your condition... how long did it take and how did you approach it?

Dakota, yes my problem is symmetrical, but my right foot burns noticeably more than my left foot. There are times where it feels like both my feet are burning, but in actually it's only my right. Don't get me wrong, the left one burns, but it seems like most of my attention is spent on the right foot. The right foot also buzzes at times, where my left foot doesn't.

Again, thanks to everyone for the quick responses. It's good to know that I do have some sort of support.
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