Thread: Pd Subtypes
View Single Post
Old 09-27-2006, 07:55 PM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Thumbs up

Thanks ZF,

just adding that i'm talking about many aspects of pd when I say puzzles -not just gdnf.

That says it the way it's been pretty much - but now we need to create this paradigm and it takes so much obsessive behavior and single purpose of mind. Tremor or rigid is going to get an overhaul and they need patients and we need patient advocates and it can be exciting for everyone . Go straight to the researcher and call them and the bio tech as well.

Perry Cohen, is the master PD advocate. He told us six years ago about this and Amgen just tripped and fell right onto our radar screens.

There are so many connections that could put the pieces of the puzzle together and the trick is getting those directly involved to communicate with you. And with each other. So people need to fall into assigned projects. I couldn't agree more with Ricks ad hoc idea there is so mch to be shared and we are getting tired.

I know if you are still working and don't have the time don't give it a second thought. Uh Oh teacher mode coming on but I have the attention of some serious resesarcher people and not just for drugs or surgery,for all angles...IbKen where are you now? Seeing them I have to bloviate.

We have paved the way through major organizations, sat with the scientitsts had some contact with MJF through his own means. We think we are all Brenda Starrs [big hair?] investigative reporters lol.because we knew Mike was going to mention GDNF at the WPF and he is telling a brilliantly parallel story right on ABC on Boston Legal. Would probably deny by foundation I don't know. But it includes our plight [s] and he is even looking like its his own story as he realizes how fortunate he's been.ho knows? It is like some poetry...who knows? It's close enough.

This is happening now. What is going to happen next. We need a surge of you to make part of a paradigm happen and I'm not exaggerating.

think about it,
sorry but its what I do when I am arouind smart and sometimes retired pwp.

done thanks,
paula

Last edited by paula_w; 09-27-2006 at 08:02 PM.
paula_w is offline   Reply With QuoteReply With Quote