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Old 09-18-2007, 01:08 PM
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Join Date: Aug 2007
Location: Little house on the prairie
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15 yr Member
fanfaire fanfaire is offline
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Join Date: Aug 2007
Location: Little house on the prairie
Posts: 179
15 yr Member
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Ah, thanks for this. I've been having increased tinglies in my right hand, and noticed yesterday that I was consistently dropping or flinging stuff held in that hand. And I've got some scraped knuckles from "bangintothingsies" (excellent term, by the way ).

Am going to my primary care doc this afternoon to ask if she will refer me to the Mayo Clinic for a "second opinion" on the Sjogren's/neuropathy diagnoses. Not that I have any reason to believe my docs in Denver were wrong, but the docs in Sioux Falls don't seem to have any respect for the previous findings. I am thinking if this stuff is confirmed at the Mayo Clinic I might get more cooperation from whatever rheumatologist I end up with.

I am very, very nervous about this. I actually feel traumatized by how the three rheumys in Sioux Falls belittled me earlier this year, and the last thing I want is to undergo more tests that may or may not be helpful (not to mention that my insurance won't cover it and I could go bankrupt paying for it all). But I'm pretty much at a dead end for treatment unless I can get someone to believe I have autoimmune disease causing nerve damage and not "just" fibromyalgia going on.

Wish me luck.

Oh, and I just thought of a bad pun: I guess misery loves "clumsy", right?

fanfaire,
who deals with nervousness by being silly
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Sjogren's, neuropathy, gastroparesis, diabetes, celiac, Raynaud's, hypothyroidism, fibromyalgia, chronic myofascial pain, periodic limb movement disorder
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