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Old 09-18-2007, 02:15 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
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LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
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Sjogren's? I don't recall reading how that diagnosis was made---could you remind me, and anyone else who's lost track. I thought you had neuropathy associated with fibromyalgia.

My neuro and I had a talk a few weeks ago about Sjogren's--I've had a positive Schirmer's test. He basically thinks it's not a worthwhile diagnosis, and he's thought a lot about it. His take is that if you have neuropathy, and you have autoimmune issues in your eyes/mouth/joints, it's more helpful to think about them separately and get treated for them separately. Once you label them Sjogren's, he thinks, you're bound to just feel down. Interesting thought, as it's just a compilation diagnosis.

But I didn't realize you had sjogren's. Do you have the antibodies? Was it a positive parotid biopsy or eye/saliva test that made that diagnosis?
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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