I guess I registered over a year ago, but I don't know that I ever said hi or posted. I can't tell. I don't remember being here, but when I went to register tonight I found out I was already here. Part of my life I guess. I apologize for the length of this.

I have a very long list of disorders and diagnoses. I have 14 specialists. I have several neuro-specialists. I will be going through my second series of complete MRIs and EEGs within 6 months because of the seriousness of the problems I am having. I normally have to have brain MRIs one a year - this year I have had full body MRIs already and repeating. Also, they are ordering a lot of blood tests that day also.

I have one neuro-specialist who has spent many nights going over my medical records on her own time to find a missing link. She has considered me as a possible Behcet's candidate; in any case, she believes I have a genetic neurological disorder that predominately affects the females in my family that hasn't been found yet. Heck, maybe the disease hasn't been found yet. My grandmother, mother had similar issues, and a sister is having some problems now.

I have a family doctor and another neurologist who both are frustrated with the whole situation and the way other doctors treat me. A lot of doctors don't want to deal with me because of the complexity, or they don't know my background so pass me off. Since I also have fibromyalgia, some doctors want to label everything fibromyalgia. I also have Fuch's Dystrophy which affects the corneas, so my eyesight in both eyes has been affected and may some day need transplants.

3 balance disorders
fibromyalgia
endolymphatic hydrops
Fuch's Dystrophy
Uveitis/Iritis
Blepharitis - repeat
arthritis
degenerative disk disease
TIA history
venous angiomas
Trigeminal Neuralgia
Body Control issues - neuro
monoclonic jerks
essential tremors
migraines and cluster headaches
numbness throughout body esp. left leg
lots of sores all the time
sleep apnea
asthma
depression disorder - surprise; it wasn't a problem until the health problems came up

more - seems like every time I go to the specialists, I get more diagnoses etc.

Lynda