Dear Roxie 2007:
I just joined the community and am reading through some threads. I have been thoroughly tested for my neuropathy and have been told that I have CIDP with some demyelination. So I was advised that IVIG would be an appropriate therapy. I made my applications for coverage and now find out that each IVIG costs around $6,000.00 and that I will have to pay $2,000.00 of that amount. If I am to have these treatments once per month for a year that is a hefty sum that I cannot afford from my income. I have the MedicareRx coverage through AARP and IVIG is considered a Tier 4 drug and I have to co-pay for 1/3 of the cost.

So my questions are whether you or anyone else with CIDP 1) can confirm the efficacy of IVIG so I can decide if it really is worthwhile, and 2) has found a way for Medicare and Medicare Rx to cover these treatments. Thanks.