--when your fiance was temporarily diagnosed, did the doctors mention a specific genetic condition, or are they jsut speculating that the situation is "probably" genetic?

There are a number of diagnosable hereditary neuropathies that can be found with genetic testing, but most docs are not that savvy, and the tests are often very specialized (e.g., not done by regular labs).

Take a look at this:

http://www.neuro.wustl.edu/neuromuscular/time/hsn.htm

http://www.neuro.wustl.edu/neuromusc...all.html#hsan1

http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html