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Old 09-21-2007, 10:31 AM
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rumpled rumpled is offline
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Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
rumpled rumpled is offline
Member
rumpled's Avatar
 
Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
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Well Lizzie... have they checked your renin and aldosterone? And have they done an ACTH (or cortsyn) stimulation test? That may tell them a lot if you are vomiting... Wretched endos... I had to be sick so long that now I am perma-sick.
That dysautonia... that could be related... I take a lot of salt and florinef. (even though I can't spell!)

Adam!
I cannot imagine being born with this (yes, it does suck) but it seems like there are a lot of groups out there and you should be able to find someone near you...
I suffer from a lot of crap... somehow you need to get the depression under control whether it be from meds or meeting people... I know meeting other people with my diseases on boards and getting things under control did a world of good for me.
Hang in there and glad you came aboard! Why not post something in the intro so everyone will say hello?
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
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