Thanks so much for the support.

Tayla, so far my sleep is better but not where it should be. My Dr. says I really need to be using the sleep apnea machine but the respertory therapist thinks it's not a good ideal. When I stop breathing at night, I have what she describes at the death rattle and it wakes me up so they think it's not safe for me to be on the machine.

The oxygen does seem to help me but the bladder problems still wake me up along with trying to figure out what side to sleep on. The VNS causes me not to be able to sleep on the left side and the RSD and TOS keeps me from sleeping on the right side. I'm still learning how to be a back sleeper.

Vicc, the depression has been a part of me ever since I was a child. Our hopes was that the VNS would help me but at this point it has caused more problems then helped. At times I want to just turn it off, at others I want to have it turned up. I don't give up to easily. It use to be I couldn't say that.
I have come along way with my mental strength.

I am glad you are back and I do know how hard things are for you at this point. Your research keeps you going and I think that is so great. My brain doesn't function to a point that I can do that. I am reading a book right now called, The Power of Now. My Dr. gave it to me to read and I have to reread it so many times to understand what I'm reading. Some of it is over my head anyway. As I told him yesterday, this guy doesn't cover a person in cronic pain and how they can deal with the NOW. At times I want to throw that book across the room. Luckily my Dr. can relate to me because he is dealing with cronic pain now himself, not that I want him to be dealing with it. After sticking by me for 17+ years I don't want anything to happen to him. Losing people you love and care about is the hardest thing a person can go through.

Desi, my computer started running too slow and making a noise. I am hoping we got it fixed. For what it cost me it should be. My kids get me through losing Bill and my 2 Grandson's. I think though we are all trying to help each other and none of us are getting there. I know it takes time and I know I might never get over losing him. That's ok though. After almost 35 years you don't want to forget all of the good nor the bad.

Angie, I emailed you my dear. You are a good friend.

Carose, as I told Tayla, I do see a difference in my sleep and how I'm feeling. I think though what is so frustrating is that I still deal with the CFS. By 4 or 5 PM I am just gone. I can't do anything after that.

I am glad to see most everyone is still here. It makes me know that everyone is still doing their best to keep going through their RSD days.

Ada